Skip to main content

couch potato day

Soooooo...



I actually kinda hate the show. It's cheesy. And annoying. And totally not Hopkins...which I loved!



But one of the topics today is interesting enough to me that I'll probably watch.



Today on The Doctors...



they'll be discussing the topic of hemispherectomy epilepsy surgery (the same as Trevy's surgery) to control seizures in a 15 month old little boy.



Click here for a synopsis of the show and find local listings in case you want to tune in too.


Comments

Adesta said…
OMG, I've watched that show a few times. I've found some useful information a couple of times.

Unfortunately, I'll miss this one. It's on tv when I'm getting the girls off the bus and picking up Kym so I'll miss it.....*sigh*
Alicia said…
Thanks for posting this. They did a special once on Tuberous Sclerosis Complex and talked about resection (subtotal hemispherectomy). TSC is what caused Remy's IS, and he had a subtotal. It is great to see shows getting awareness out there. People don't realize how devastating seizure disorders are and how terribly they can hinder the development of little ones. Yay for the Dr.'s.
Danielle said…
Bummer...I missed it. Did you guys catch it?

...danielle
MJStump said…
i saw it. it was a family from Bosnia and their son looked pretty young to me. don't they typically wait til the kid is about 2 or so?
...i just looked it up, the little guy was 15 months old.

i didn't catch what type of epilepsy they say he had...i know they didnt say IS.

they basically said what happens to the brain when seizures occur, and how the procedure was done. at the end they brought the little guy out and briefly said how much progress he has made since his surgery...i wish they would have talked more about his development pre and post surgery.

i know kylie hasnt gone through this, but it made me cry and feel all those emotions that we felt with her diagnosis...wounds still have much healing.
We actually had a friend e-mail us about the show & i looked it up for funsies. WHEW!!! is all I can say. You can go to the show's website & search hemispeherectomy. Actually, I know you don't have time to be googling stuff like that. How about I just forward you the email I sent my hubby to watch??
P.S. i don't like that show either...never watch it. All of those doctors ride my nerves a little bit. I'm more of a Dr. Oz type of girl!
Colby said…
Danielle...Been lax @ checking blogs...Missed this episode...Will check their website...

The show is OK...I pick up a few tidbits here and there when I watch...

Sometimes I feel so SATURATED in medical "stuff," I just can't watch those shows...Unless it is something I am particularly interested in...

Cyndi
Mrs. M said…
I saw episode about the little guy with TSC...and it is on You Tube if you want to find it there. You're the second cyber friend who brought it up this week. I have another friend here in ON who is pushing to have her son...he's 2...assessed for surgery as nothing is helping his seizures. They were looking to go to New York but it looks like it may work out here in Canada at Toronto Sick Kids. Anyway....
....glad Trevy's progressing well and that the initial stages of surgery are behind you guys.

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...