So remember the other day?
When I waxed all nostalgic about the great answer hunt in the crazy land of Infantile Spams. And things of that nature?
Seems I misunderstood Dr. Neuro's email. I shoulda waited for the phone convo before writing lengthy posts. Lengthy misguided posts. My bad.
And I probably shouldn't be laughing right now either. But it is...really...kinda funny. And SO very me!
The thing is...I'm not WAY off base.
And to be fair. Her email was misleading! I emailed asking if it was Cortical Dysplasia. She emailed back "it is a migration disorder".
Well...so is CD! So they're in the same family. Both falling under the Malformations of Cortical Development (MCD) category.
The same. But different.
And without making this post overly long and boring. I'll try to relay what I learned.
Cortical Dysplasia (which is not the findings in Trevy's pathology) is a migration disorder that is a little more organized. And is thought to happen later during fetal development.
Heterotopia...also a migration disorder (and is Trevy's pathology) happens in the very early stages of fetal development. The word heterotopia is really just a fancy way to say "displaced". (Barbara may be able to better comprehend and explain some of these things! I recommend clicking over there regardless...cause her current post is a great read!) The neurons in Trevy's brain made it past the central region and began the migration upwards towards the top of his brain. But somewhere along the way the little neurons lost their way. And were confused. And are instead displaced. EVERYWHERE. Little itty bitty gray matter neurons are peppered throughout his white matter. So more specifically Trevor has Gray matter heterotopia. Albeit mildly.
Now...as Dr. Neuro said...how does this relate to neurology? Is this the cause of his seizures? What does his future look like?
We just don't know. (Neuro School theme song?)
But we do know that Trevor is responding (in the short term) fabulously to surgical intervention! We are now counting in the months of seizure freedom. Something we haven't done if a very very long time! And he is very very young! Of course I'd like to more fully understand how this new piece fits into the puzzle that is my son. Dr. Neuro too. But she was unable to find any helpful literature at all. She repeatedly reminded me that science is constantly discovering. And that Trevy will be The Literature for another family.
Which is in a way...comforting.
As is reminding myself that Trevy is still Trevy. Just as he was Given. His story is still his. Just like it's been Written.
But lesson learned. Next time I have a pathology report to report...
I'll wait for the phone convo first!