I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.


Comments
Having 'been there' many times, many many times, I do not recall seatbelts used for bad. Really ever. Temporary containment measures allow for group activities and instruction that might otherwise not be possible even with a high adult/child ratio.
I gotta say, I rather like the design of the chair. Consider suggesting little pillows, for comfort. Barbara
My first reaction....was OMG! But I get it. Look at the kiddos with really low muscle tone who need these chairs.
Look at the sensory and autistic kiddos who need to be "hotdogged" in a carpet or weighted blanket. I get all this and it doesn't freak me out (even though there was a death of an autistic child in can last year due to a rug/hot dog technique inappropriately used....not the norm, I realize)
Freaks me out slightly though. I just get visions of all these little pre-schoolers tied down, trying to get out, tipped over in their chairs....that's my craziness getting away from me because we KNOW that's not what it's about.
Soooo.....my burning question; what is the school's policy/plan with these chairs?
If you would like more information on the issue of restraints and seclusion, the federal government has released a state by state report on the rules. You can view the over two hundred page document at http://www2.ed.gov/policy/seclusion/summary-by-state.pdf.
And I'm wondering if I used a high chair or something like the rocking chair...if Trevy might actually watch a whole Signing Times DVD rather than watching the credits and running!
I suppose the heart of my issue with the school using a belted chair is ~ trust. I don't trust that all of the staff would be using it for the right reasons. Also...it has been used with Trevor during circle time and for Time Out. I do not want it used for Time Out. He has a one on one aide who can and should be enforcing time out with him. But if she needs to use it during group...so that she can focus on helping him catch the learning rather than spending her energy making him stay...that's different.
Anyway...I was curious how others felt. It's been interesting to hear the dialogue!
...danielle
...danielle
Barbara
Good point about pop ins.
...danielle