I wonder if you've noticed my blog absence lately.
Both in posting. And in reading. Or at least commenting. I still read all my little IS buddies blogs. Because my heart has this really sappy connection and can't rest if I don't check in. And it's not that I haven't been posting. It's just the emotion has been lacking. On my side anyway.
But my time is SO crunched. My energy SO drained. I just haven't been as into it as I once was.
The thought even crossed my mind recently that I'm not sure why I continue to add my voice to the noise? Or that I will. That maybe it's something I could cut out to open more time and energy for other things. Like working out for instance? Lord knows my jeans are begging me to!
But then last night I got an email from a local-ish mom. Reaching out to me because she deeply believes her baby has been misdiagnosed. Especially after watching video clips of Trevy's spasms.
We spent a large chunk of the night emailing back and forth.
The video clip I saw left me positively heart sick. And convinced she was right.
And now this morning...as they're in route to the ER with their sweet little baby who is clustering in the back seat of the car. Heading to the ER in part because I urged her to do so. A part I wouldn't be playing if I didn't keep this blog.
And it reminded me why I do this. Sure it's therapeutic for me too. I definitely get a sense of community from those (both seizure families and non) who have connected with us. You're my peeps.
But really a large part of why I continue to do this...is for families like her's.