Skip to main content

off to a bumpy start

Oh sheesh.



Trevy has always been Mr. Compliant.  Happy Goes Lucky.  Happy Being Trevy.



But lately we've noticed a blossoming pattern.  



He's becoming Trevy The Opinionated!  I dare you to try taking his iPad away!  According to Mrs. Speech this is a wonderful developmental milestone to behold.  To mommy & daddy however...it's becoming a parental challenge!  Just when I thought I had being Trevy's mommy down pat too! 



So when Miss. CNA  May May showed up early this morning.  To drive Trevy to school rather than taking the bus like normal.  Because today marks the first day of Trevy's pre-preschool ABA therapy.  And his routine was turned on it's head.  By yours truly. 



He was having NONE OF IT!  



None of it, I say!  



It was absolutely heart wrenching watching them drive off.  Trevy sobbing and reaching for me.  Totally not grasping our desperate attempts at explaining he was still going to school.  Saying anything we could think of to help him understand.  His communication is coming along.  But still so far to go! 



Miss. May May called a handful of minutes later (the school is literally a hop, skip and jump away!) to say she had to hold his hand the whole drive.  But once in the school he perked right up!  And was back to Happy Hungry to Learn New Things Trevy!  And sent this picture to prove it! 



blurry yes - but I think you can tell he's happy picking out a book to read!
Labels:

Comments

blogzilly said…
Second attempt to post...this thing is being glitchy.

Short version:
Glad things good.
September 15, 2010 at 8:43 AM
Danielle said…
Same story...just at your place! Blogger is giving me tons of tude lately!

Looooved the vid of Bennett eating! What a cute face!

...d
September 15, 2010 at 4:45 PM
Mrs. M said…
I just love Miss CNA and her pic phone. What a great relief for you to see the evidence of contentment and happiness rather than having to take her sweet word for it!:)

These developmental milestones and "phases" are really hard to go through. When people tell me it's a phase and it's really great and blah blah blah I always think, "Yeah?! I don't care, I just want to handle it in a positive way and that's not happening!!! (cause I want rum!:)"

Hang in there through this new found protest and independence stage!
September 16, 2010 at 9:41 PM
Sinead said…
I could have written that. We are going through severe saparation anxiety and major meltdowns during transitions. Its quite quite horrible. I am worried about how much bad behavior she is learning at school.
September 17, 2010 at 4:16 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more