Skip to main content

summary of my morning

Love note from Jonathan who went golfing before work (with permission :) and sweetly prepped both coffee and Trevy's meds. 



Am greeted by bed-head Trevy with "paaaaaaaaaaaad" demands.  Which is of course Trevy speak for iPad.  We may have an addiction problem on our hands!  



::smile:: 



Bristel is complaining that she's not a "buser" today.  Evidently it's just not cool for Kindergarteners to be picked up by mommy! 




Meanwhile industrious Toby has already completed his Penmanship and Science and  is now begging to add a Pokemon video to our Netflix que!  




I think it's time for a 3rd cuppa already!  And the clock just struck eight am! 

Comments

Beth said…
Hi! Just want to say I love your blog :)

Also I had a question because I am confused, I thought you homeschooled Toby and Bristel, but she goes to kindergarten? :$ I'm just confusing myself, thank you for the clarification.
Danielle said…
Haha...I was wondering if anyone would ask. :)

Sooooo...our local K program is only half days. And Bristel is VERY social. For this year (next is yet undecided) she's attending our local public school. And loving it thus far! She's in the room right next to Trevy and sees him in passing. It's sweet.

More to say...but haven't had my coffee yet!

...danielle
Beth said…
Thanks a bunch for answering! completely forgot I asked, (i forget to even eat when I'm studying for college exams). And that's sweet :) Glad she likes it! :D

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...