It's more annoying than anything.
Okay. So that's not entirely honest. Because changing his meds scares the absolute crap outta me.
But it's annoying that we have to repeat the stick so soon.
And it's annoying that the results of the last draw are getting to me. In the head. And heart.
It's annoying to still feel scared. I thought I was long past this phase. I thought I had grown some.
And, as an aside, people in my "other" (meaning non seizure) life are annoying the crap outta me lately too. Especially those who have little to no clue (or compassion) on the fact that life with Trevy affects every facet of who I am. We had someone sit in our living room and criticize our leadership two months after half of Trevy's brain was chopped out of his head and say to us point blank, "Well, it's been two months". Like, duh, you should totally be over it by now. I mean, two months, really...it's time to let it go and let God. Sometimes I can't stand so-called Christians. And though I crave to be a Grace-Filled woman. Every time I see certain people the voice in my head screams, "YOU SUCK". Clearly, I have some bitter issues to work through. Because I just know someday my lips will betray me unless I do. Probably it will be after taking a phone call from Dr. Neuro telling me we need to repeat labs ASAP because the results of the last draw weren't good.
Which is the call I took this weekend.
All of Trevy's med levels are low. Not good. Even more not good...his platelet levels are low too. Which may or may not be a lab error. Which may or may not be linked to Dilantin. Until we know we can't even increase his dosage to bring him therapeutic. The platelet levels were low enough that Dr. Neuro asked if I was noticing any extra bruising on Trevy's little body. The good news is...I haven't. The bad news is...
We have to repeat the labs. Jonathan is actually there right now. Hopefully getting it done. I say hopefully because rare is the day we arrive to the lab and not run into any issues. Like, the orders not being in. Which just drives me absolutely bonkers. Especially, because we have to do the draw before Trevy's am dosing. Which means he's late on his meds. And his levels are already low. Which brings out my Mama Bear side because we're only working with half a brain now, people!
So I'm sitting here alternating in my head between...
Please call, Jonathan....Please call, Jonathan...Please tell me you got the draw done...
and fighting off the urge to send YOU SUCK emails to random annoying people.
HOLD THE PRESSES...the phone is ringing!
::big fat sigh of relief::
The labs were drawn. Now we wait.
And Jonathan confirms Trevy's adorable deliciousness yet again. Evidently, as soon as Trevy started to realize where they were he began with the,
So sweet. In that slightly morbid Seizure Mommy sorta way. After the poke water works stopped Trevy even repeated Daddy's,
Followed by an immediate and emphatic,
I mean, really, how cute is that?!