Tuesdays are okay.
Wednesdays are too.
Thursdays are my errand day and are nice because Grams keeps the kids so I can do my running around solo. I'm a fan of solo.
Who doesn't love Friday?
Saturdays are sweet. When they're lazy, anyway.
And Sundays are usually restful and nice.
But Mondays are my favorite!
And you're probably going to think I'm awful when I tell you why too!
Trevy doesn't have preschool on Mondays. He's in a Tuesday - Friday half day program. Which means he's at home all day on Mondays. Before you start thinking how sweet it is that Trevy's at home day is my favorite, let me assure you. That is not why! And you're going to think I'm a terrible mom when I tell you why. Or at least, I'll feel like a terrible mom. Because Mommy Guilt finds me an easy target. Also. When I say things like I'm about to say I'll typically hear from at least once concerned friend who is worried I might be fighting off Depression. I like to think of it more as living honestly.
I love Mondays because Trevy spends the entire day with Grams!
See, somewhere over the past few months Mondays have become Trevy's Grams Day. Jonathan drops him off at the crack of dawn. Because that's when he heads to work. Grams' house is on the way to his work and she's an early bird. So it works. She and Trevy are very close. And she's just as in tune to his seizures and the side effects he's challenged with as a result of fighting the Seizure Monster...as I am. Which means I never ever have to worry about him. Do you know how nice it is to have a whole day Trevy-worry free? Did I mention that lately she's been keeping him all the way through to his bed time?! It's like a breath of fresh air after being under water far too long for your burning lungs. That's what. Sure, I get a much needed break from him when he's to school. But he's never far from my thoughts. Mondays are different. I can clean the house and not wonder if the sirens in the distance are heading to his school. For him. I can fold laundry and not wonder if he'd missed any of his therapies today. Or if Miss.OT is still not seeing how his right arm is hanging dead-like by his side again. Because I know that Grams sees it. I don't have to worry that he's not being challenged to use his words. And both legs equally. Because we're totally completely unequivocally on the same Trevy Page. He's not a pay check to her. He's not a project. We don't have to write in detail on legal documents what he needs to thrive. He's her grandson. And she loves him more fully than any teacher or therapist ever could. Which is not to say that his therapists and teachers don't love him. Or aren't important. They are. Some more than others. Because I give extra points to those that are on the same Trevy Page as me. But still... it's not the same. Grams is filled with the same love that drove me to pursue radical brain surgery to rescue him. It takes a special sort of love to willingly walk to the brink of death. To spend hours pouring over options and interventions. She's connected with him in the same way that gave me eyes to see the minutest of eye rolls when his Infantile Spasms began boiling to the top again. There are only two people (other than family) in Trevy's life that I have full confidence never miss a seizure. Which is why I'm never fully comfy when he's at school. But with Grams it's different. She notices everything. Everysubtlething. Grams has completely dedicated her basement (and now her office too!) to Trevy's developmental progress. Every toy has been chosen for it's therapeutic benefits. Little tables and magnetic boards filled with shapes and letters are her decor of choice. She calls me to share any exciting new thing he's accomplished. Or when he's just not himself. Or sometimes she doesn't call me at all. Suddenly I'll notice the clock. And how late it is. But be amazed that it's been hours since I thought about him. Or wondered what he's doing. Because I know he's safe. And loved. And being saturated with therapy of a different kind.
And it feels wonderful to have a day completely Trevy free!
Yep. Mondays are definitely my favorite day!