Skip to main content

name?

One of Trevy's new ABA targets (he's mastered "hi" and "bye") is "name?". 


I'm pretty sure he gets it.


Cause he's pointing to people everywhere and asking "name?"


We spent a full ten minutes this morning snuggled on the couch scrolling through our iPad photo albums.  He gets giddy happy over the Disneys.  He was demanding to know everyone's name or I was asking him for so-n-so's name and he'd tell me.  


Di-Dough (Bristel) 


Wee-Bee (Toby...who is thrilled he's no longer Wee-Wee for obvious reasons) 


Da-Ee (Daddy...a bit of regression there as he was clearly saying Da-Dee for awhile)


It was super cute.  Also...I thought it was pretty cool that when it was a thing and not a person he would switch it up and ask "issss" (this). 
Labels:

Comments

another mother said…
I truly laughed out loud when I read that about Wee-Wee as Toby's original name. I can see why he is thrilled. Trevor seems to be doing great. And honestly I wouldn't worry too much about the regression of Daddy. As children learn speech the sounds sometimes change and they seem to regress with certain sounds. However, obviously Trevor is not like other children. He is extraordinary in that he is doing all of that with half of a brain. I know you know this and I know that day-to-day can be a struggle. But I am just amazed at the miracle that is Trevor. His progress never is awesome.
March 15, 2011 at 2:11 PM
Danielle said…
I told someone today that every day with Trevy is surreal. I don't think she really got my drift...but I bet you do, AM. :)

...danielle
March 15, 2011 at 5:25 PM
blogzilly said…
That's pretty good that he's got the hi and bye down despite the continued seizure activity. As much as it sounds like a consolation prize type of speak, they were telling me at the last eval that greetings like hello and goodbye are way down the line developmentally and if he is initiating them that's great.
March 16, 2011 at 8:01 AM
Danielle said…
Really? I'm SO far removed from typical baby development...I can't hardly remember what my big kids did when.

It does feel consolation prize-y. But I'm making the choice today to try and stay positive. Haha. We'll see how long it lasts! :)

And as I've already lost my lid with Toby over his grammar (what is it with boys and grammar?!) I should probably start fresh righhhhht...

NOW!

...danielle
March 16, 2011 at 8:28 AM
Anonymous said…
Super cute! Reading this warms my heart! Barbara
March 17, 2011 at 5:08 PM
Sinead said…
So heart warming to see the progress.
March 18, 2011 at 10:47 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more