Skip to main content

who are we wearing purple for?

or as Mommy calls this cutie "Cool Owen"!


Lincoln's story can be found here.  If you can pull yourself away for his eyes, I mean!




Read more about sweet Sophie here


Need more Kylie cuteness?  You can find more here.
You can follow Charil's beautiful story here


Wanna watch Super Man soar? You can right here




 






You can find more Luke-kissy-cheek-ness right here


Click here to visit beautiful Emily's blog


Hannah doesn't have a history of IS...buuuut...her seizure disorder in many ways mirrors IS kids.  Multiple seizure types which are med resistant.  At this time Hannah's underlying epilepsy diagnosis is a mystery.  Her mom shares their journey with epilepsy here. 


Thank you to all the families who joined us today! 

We wear purple on your behalf not just today...
but every day. 

Labels

Labels:

Comments

erica said…
we have some amazing kids huh? :)
March 26, 2011 at 7:36 PM
Sarah said…
Oh, darn. I missed your post yesterday. We wore purple today though and will tomorrow when we go to our Epilepsy Awareness walk!
March 26, 2011 at 7:57 PM
Ashley said…
I don't have any pictures, but I wore Purple for Trevy. Of course being the only female in a household of males, I was the only one who had any purple at all.
March 27, 2011 at 5:56 AM
legomaster said…
Great idea Missus!
Hearts to Trevy and all those luvvie little kiddos!
oxox
March 28, 2011 at 9:09 AM
The Blatchford Family said…
Oh bummer. Our picture didn't make it up. :(

I wear purple for my little boy Lincoln.
March 28, 2011 at 10:09 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more