Skip to main content

who will you be rockin' Purple for? (link in)

I've wanted to do something festive on Purple Day forever. Or for 3 1/2 years anyway.  Cause sometimes 3 1/2 years can feel like forever.  


::smile::


This year I was going to get a purple streak in my hair.  Turns out finding time for a salon run wasn't gonna happen.  I also meant to use purple text with all my posts for the month of March.  Seeing as how I'm hit n' miss with even remembering to add my Signature...that wasn't ever really gonna happen either. 


But this morning I was inspired with a new idea. Maybe even better! 



What if I posted pictures of Trevy's seizure fighting friends instead?


If you'd like to join me here's what to do:


  • Email the picture of your choice to me (click here to be taken directly to my email) at tanzie213(at)yahoo(dot)com today.  I know it's last minute but the idea literally just hit my brain!  Which means other than me...you're the first to know!
  • In the subject line write: I'm wearing purple for (your child's name)
    • If you'd like to spice it up first (see Trevy's below) Picnik is a free online photo enhancing program.  I use it all the time!

    • Include the link to your blog or update site if you'd like for others to have a chance to read your unique seizure fighting story and I'll make sure to link you in.  
    • Lastly, I'm not trying to be a meanie here.  Promise.  But I would like to keep this for children with a history of Infantile Spasms only.  I'm in loooooove with some of your children who are not IS babies!  But my goal is to promote awareness for Infantile Spasms this time around!  But wipe those tears away...cause you're totally free to steal my idea and use it on your blog! 

      I'm excited about this!  I hope it works...  If it does...maybe it'll become my yearly Purple Day thing?

      Popular posts from this blog

      No, I don’t know him personally

        I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

      I sure hope...

      they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

      it ain't sexy livin' on an island...

      Especially when you have to cross bridges to get ANYWHERE. Very LARGE bridges. The crests of which I inevitably get stuck at. Speaking of...why is it that at the tippity tops of our bridges...the railings always open up? To reveal an eagle's eye view of the white capped depths below? I HATE that. And sure enough...in route to Dr. Pedi yesterday...they must have seen me coming cause traffic ground to a halt at the top of the Mt. Hope Bridge. Where I felt less than Hope-ish. My palms gushing my nerves onto the steering wheel for a good 15 (felt like forever) minutes. Not just things medical bring out my cowardly lion. Heights do too! Anyway... Grabbed an iced coffee and chocolate cream filled to settle my nerves on the way. And we arrived on time...in one piece. Of course. Dr. Sick-Visit-Pedi breezed in chart in hand. Glanced down. Then at Trevy. Then said... "He has a history of Infantile Spasms?" Surprise and speculation in her voice. We get that a lot. It...