Skip to main content

I might make it a T-shirt

 

 

 

trevys MRI

 

 

…danielle

Comments

legomaster said…
Shut the fridge door!
:)
You CRACK me up!
I double-dare you to make shirts. Go for it my friend!
PS:
I love your attitude....it's a blessing to me especially right now...and R's surgery is nothing compared to Trevy's...but still....
Thanks!
June 4, 2011 at 6:29 PM
Anonymous said…
I don't even know what to say - I can't even wrap my mind around that. You NEED to make it a T-shirt! Looks like God knew what He was doing with every little fiber of Trevy's precious being.
June 5, 2011 at 4:57 PM
Dora's Daddy said…
There's a great reminder of God's awesome power in there for sure! God Bless Trevy!
June 6, 2011 at 7:28 AM
joanne foltz said…
John 2:11 "This beginning of miracles did Jesus in Cana of Galilee, and manifested forth his glory; and his disciples believed on him."
This is to glorify our Lord!! Amazing!! Trevor is a walking miracle of God's power and grace to us, and He is the one who is worthy to be praised! Bibi PS wear the t-shirt proudly!!
June 6, 2011 at 7:46 AM
blogzilly said…
I'd buy one. Maybe even two, if you made black ones.
June 7, 2011 at 5:44 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more