To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.
Comments
Yesterday was Sophie's last day of summer school and I am going to *try* and embrace the lazy summer days that lie ahead.
Honestly, this is my trying to make lemonade out of summer break. The idea of full on Trevy just makes me want to weep. And then I feel guilty for even feeling that way. He's just SO much work. If I had a full time nanny/cook...it wouldn't be an issue. It's the not having the full time nanny/cook that has me shaking in my mommy-boots!
...danielle
He's gotten so tall, Danielle.
It's hard to find perspective and patience and energy isn't it?
This would be a lot of work initially...one very full day....have you ever heard of The Big Cook? It's a cookbook (Canadian) where you cook for a day and have meals for a month. Some girlfriends and I got together to do that ....it took us 12 hrs with no kids....and although we were exhausted, my goodness it was a lifesaver...only having to pull meals from the freezer in the morning. Maybe you have a 2 or 3 friends to do that with? Church? The dads? Something! ~ Can you hire a student for housekeeping over the summer? There should be funding for housekeeping I say!!
Hang in there, my friend.
Hugs,
M
Does Sophie ever walk stiff and funny like that?
A part of me wants to believe it's "normal" neuro kid stuff...
...danielle
It all comes down to those core muscles. Sophie has weak core muscles. And EVERYTHING stems from those muscles. So for him to hold that tiny little flower in between those fingers for a period of time...well...it can take a lot of you. And...yes...Sophie ALWAYS walks kindof stiff and funny.