Skip to main content

trevy bear

 

 

image

not image of the actual traveling bear…but I think it’s too cute

 

 

A cyber (and special needs) mommy friend emailed me recently.

 

 

Asking if she could use Trevy’s Story as the inspiration for a beautiful (and stinkin’ adorable) awareness project she’s working on.

 

 

I said…

 

 

Ummmmm…lemme think about that…

 

 

YES! 

 

 

I was surprised and honored and happy and all sorts of emotional responses.  Which did not exclude sappy.  In love 

 

 

Trevy has an extraordinarily rare and catastrophic seizure disorder.  Playing a part in spreading awareness has become a passion for me.  And in a way…is intricately woven into the fibers of my healing process.  We all heal in our own ways.

 

 

Evan Bearowitz (Trevy’s aka) is now accepting come-play-with-me requests!  In fact, I’m pretty sure his first destination is going to be England.  We may need to have a little safety awareness training first though.  Last time I visited, I was almost smooshed by a taxi.  They totally drive on the wrong side of the road over there!  Winking smile 

 

 

You can read Evan’s (Trevy inspired) story here.  The last paragraph was the one to really get my sappy really flowing…

 

 

Before I was born, my parents lived in Africa to bring people Hope. Taking care of me and helping me grow has been a very big job for them. They said I am now brave and strong enough to travel all around the world to bring people Hope myself.  I want to teach people about seizures and show them that I can still do lots of fun things in life. I’d love to go back to Africa to meet my parents’ friends and I would love to meet friends of my very own everywhere else. Can I come visit you?

 

 

 

…danielle

Labels

Labels:

Comments

Anonymous said…
What is it you say...my sappy's leaking! I thought about you the other day because this is the first time I've felt so passionate about raising awareness as it's the first time I've had something to raise awareness about. I am overwhelmed with the need to educate and wasn't sure if I was losing my mind, just wanting to scream at everyone "Seizures stink and they're sooo complicated!" Feeling the rollercoaster.

Anyway...Evan?Trevy Bear is our international bear so all of you Over the Ponders, sign up at http://www.trackpatforpsa.org/invite-pat-to-visit/ for a visit.

Always great to read your blog. Must go fix my leak.
November 16, 2011 at 1:38 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more