Skip to main content

What can I say? I’m a sappy head.

 

 

If you’ve spent any time here at all…

 

 

you know I’m a big fat sappy head!  No, like, seriously.  My eyes water at the drop of a hat, sappy.  I told a friend recently, that if my sappy annoys him we should probably never do Disney’s opening ceremony together.  Because.  Well…   Let’s just say…you’d better pack extra Kleenex!

 

 

One thing that makes me extra sap-a-licious is when hearts outside the world of epilepsy knit with ours. I always love when non-epilepsy peeps connect with us.  Because it helps me feel like I’ve accomplished part of my passion for spreading awareness.     

 

 

So when Tricia of critters and crayons left a very heartfelt comment a few months ago, I responded by blubbering for awhile.  Because when you have years of emotions invested – heartfelt comments do that to a girl.   I then left her a little thank you note over at her place.

 

 

(if you’re looking for a new mommy blog that will make you laugh and give you some great ideas…I highly recommend critters and crayons)

 

Tricia is to blame for even more mascara running (if I had time to put some on, I mean) moments too…

 

 

Because she mentioned Happy Being Trevy as one of her five fave blogs during an interview with before the baby wakes.

 

 

AND

 

 

posted about us recently

 

 

AND

 

 

added us to her blog roll! 

 

 

 

I’d complain about all the blubbering that she’s inspired but I hear that a nice sappy fest every now and then is good for the soul.  In love

 

 

…danielle

Labels:

Comments

Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more