Skip to main content

seven snippets

 

 

One

 

There are weekly nut shell link ups all over the homeschooling world.  I join in when I can.  I’m SO happy to find one for my special needs side of life!  If you’re a special needs mommy with a blog…I hope you join the Seven Snippets Fridays hosted by Bringing the Sunshine.

 

And a special thanks to my sweet friend, Heather, for sharing her seven snippets.  Which inspired my sharing. 

 

 

Two

 

Trevy had his annual eye exam yesterday.  I *heart* Dr. Waldorf.  He has such a peaceful presence and is SO great with Trevy.  Trev was a pro at the exam this time around.  He has right sided Homonymous Hemianopsia.  Which is just a fancy way of saying, he’s missing the right field of vision in both eyes.  This is a direct result of his hemispherectomy.  It’s so wild to see him swat at an itty bitty piece of lint falling in front of his face.  But not see a flower toy come from behind the right side of his head until it’s literally all the way in front of his left eye!

 

 

So we have a referral in for a Vision Specialist to help at school.  For now, I think he really just needs observation and recommendation.  But as the academic demands get harder and the print gets smaller…he’ll probably need more help.

 

 

But then again.  Every time I think a “probably” Trevy goes and surprises me!

 

 

Three

 

 

Bristel turned seven yesterday!  We changed her room around in honor of her being “all grown up now”.  She’s asking for Texas Roadhouse for dinner tonight.  To be followed by a mini-shopping spree at Toys R Us.  Smile

 

 

Four

 

A friend pushed Trevy at school today.  Sad smile

 

That’s the bad news.  The good news is…he doesn’t seem to be holding a grudge about it. 

 

 

Five

 

His articulation has been in the toilet lately. 

 

 

But.

 

 

He is stringing 3-4 words together!  So I’m hoping it’s just a speech growth spurt!

 

 

Six

 

 

He’s not a baby any more.  And it’s been awhile since a stranger commented on how adorable he is.  We got that all the time when he was a little guy.  As often as possible, I have a sitter with him during Toby’s various games.  It’s too long for Trevy to sit still.  Toby likes to have me watch him and because it’s impossible to keep Trevor safe and watch the game – we get a sitter!  The other night, she brought him to visit us during the game.  He was in an exceptionally happy mood.  Being super silly.  And funny.  And so very Trevy.  Which I happen to think is adorable.  And so did a grandma on the stands.  In fact, she came to me after the game and gushed about how beautiful he is and funny.

 

 

I’m pretty sure a little sappy leaked out the corners of my eyes.

 

 

There’s something about someone else thinking he’s special that gets me every time.

 

 

Seven

 

 

Our winter season of Special Olympics kicked off two weeks ago and is going fabulouso!  I’m leading the warm-ups this time and being me…I’m making everyone do the Dan Zanes version of The Hokey Pokey.  It’s Hi-larious watching the men-folk hokey pokey as little as humanly possible!  Trevy, on the other hand, can’t stop singing it!

 

 

…danielle 

Comments

Anonymous said…
It's hard to hokey-pokey and still look cool.
February 6, 2012 at 8:40 AM
Andi @ BringingtheSunshine.com said…
I often wonder how many years we have left of "He's so cute!" with Nathan, though I try not to think about it and just relish in the cuteness. :)

I'm so happy to find you! Thank you for participating in Seven Snippets Friday!
February 9, 2012 at 7:33 PM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more