Skip to main content

seven snippets

 

 

One

 

There are weekly nut shell link ups all over the homeschooling world.  I join in when I can.  I’m SO happy to find one for my special needs side of life!  If you’re a special needs mommy with a blog…I hope you join the Seven Snippets Fridays hosted by Bringing the Sunshine.

 

And a special thanks to my sweet friend, Heather, for sharing her seven snippets.  Which inspired my sharing. 

 

 

Two

 

Trevy had his annual eye exam yesterday.  I *heart* Dr. Waldorf.  He has such a peaceful presence and is SO great with Trevy.  Trev was a pro at the exam this time around.  He has right sided Homonymous Hemianopsia.  Which is just a fancy way of saying, he’s missing the right field of vision in both eyes.  This is a direct result of his hemispherectomy.  It’s so wild to see him swat at an itty bitty piece of lint falling in front of his face.  But not see a flower toy come from behind the right side of his head until it’s literally all the way in front of his left eye!

 

 

So we have a referral in for a Vision Specialist to help at school.  For now, I think he really just needs observation and recommendation.  But as the academic demands get harder and the print gets smaller…he’ll probably need more help.

 

 

But then again.  Every time I think a “probably” Trevy goes and surprises me!

 

 

Three

 

 

Bristel turned seven yesterday!  We changed her room around in honor of her being “all grown up now”.  She’s asking for Texas Roadhouse for dinner tonight.  To be followed by a mini-shopping spree at Toys R Us.  Smile

 

 

Four

 

A friend pushed Trevy at school today.  Sad smile

 

That’s the bad news.  The good news is…he doesn’t seem to be holding a grudge about it. 

 

 

Five

 

His articulation has been in the toilet lately. 

 

 

But.

 

 

He is stringing 3-4 words together!  So I’m hoping it’s just a speech growth spurt!

 

 

Six

 

 

He’s not a baby any more.  And it’s been awhile since a stranger commented on how adorable he is.  We got that all the time when he was a little guy.  As often as possible, I have a sitter with him during Toby’s various games.  It’s too long for Trevy to sit still.  Toby likes to have me watch him and because it’s impossible to keep Trevor safe and watch the game – we get a sitter!  The other night, she brought him to visit us during the game.  He was in an exceptionally happy mood.  Being super silly.  And funny.  And so very Trevy.  Which I happen to think is adorable.  And so did a grandma on the stands.  In fact, she came to me after the game and gushed about how beautiful he is and funny.

 

 

I’m pretty sure a little sappy leaked out the corners of my eyes.

 

 

There’s something about someone else thinking he’s special that gets me every time.

 

 

Seven

 

 

Our winter season of Special Olympics kicked off two weeks ago and is going fabulouso!  I’m leading the warm-ups this time and being me…I’m making everyone do the Dan Zanes version of The Hokey Pokey.  It’s Hi-larious watching the men-folk hokey pokey as little as humanly possible!  Trevy, on the other hand, can’t stop singing it!

 

 

…danielle 

Comments

Anonymous said…
It's hard to hokey-pokey and still look cool.
I often wonder how many years we have left of "He's so cute!" with Nathan, though I try not to think about it and just relish in the cuteness. :)

I'm so happy to find you! Thank you for participating in Seven Snippets Friday!

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...