Skip to main content

randomnings

 

 

Trevy comes from his bath wrapped in a towel.

 


Pauses in the middle of the living room. Looks around. And with no warning throws the towel off and stands there in his "Roman Glory" with his fists in the air shouting...

 


Pow-ah Wange-ahs!

 


Trevy Speak for Power Rangers. :P

 

 

***********

 

Trevy still has a crooked smile from his surgery. He probably always will. It's adorable and him. So he smiles at Toby who says to me...

 


His smile may be broken...

 


but his love for us isn't.

 


And his smile is one of the most special things about him.

 


Um. Yeah. I cried.

 

 

**********

 

I’d just washed Trevy’s hair and Toby offers to be his “hair stylist”.  In true big brother form he starts mussing up Trevy’s un-curls.

 

No no no no

 

Trevy protested

 

I PEACOCK!

 

We’re pretty sure he meant to say he wanted a MOHAWK since he was squeezing his hair down the middle of his noggin trying to make one!

 

 

**********

 

Bristel had a fat lip so I gave her Carmax to treat it.  She said her lips felt funny.  I told her the medicine makes your lips tingle.  She then asked…

 

Are there any medicines that make your ears twitch?

 

 

**********

 

 

Me: Tobin, your dresser drawers are atrocious!

 


Toby: I know. I need to clean them.

 


Me: Um, yeah, like right now!

 


Toby: What?! Right now?! I'm not free until 3:30 on Saturday!

 

 

**********

 

 

Bristel says her peanut butter and jelly tortilla really cheered her up. 

 

 

***********

 

 

 

 

…danielle

Comments

legomaster said…
Oh so funny!
Your kiddos have hilarious sense of humors and good hearts.
Thanks for sharing.
Danielle said…
They DO make me smile!

I haven't written any randomnings in awhile and Toby asked me why. He loves going back and reading the old ones! I told him I'd start doing it again just for him. But really...I think it's for me! ;)

...d

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...