Skip to main content

what you can’t see, CAN hurt you!

 

 

As a result of Trevor's brain surgery, he lost vision in the right peripheral field of both eyes.  It’s called Hemianopsia and Wiki can tell you all about it.

 

 

He navigates so well that it's what I call a "hidden or sneaky disability".

 

 

 

Until he runs smack into a pole at summer camp and gets a ginormous goose egg over his right eye!

 


Poor baby, his aide said he hardly cried at the time or on the way home.  The accident happened right before go home time.  I guess he saved all his tears up for me.  Because the minute he opened the door he just melted into a sobbing puddle. He was exhausted and I'm sure, frustrated.

 

It's not fair when things that you DON’T EVEN SEE smack you in the noggin'!

 

But the good news is…he received a 4 week partial camp scholarship this summer.  That means he’ll have plenty of time to learn his way AROUND all the poles!

 

…danielle

Labels:

Comments

Anonymous said…
Oh my goodness... I know how he feel with these incidents. I lost my complete left peripheral. One thing I speak about to groups is whether it is better to have invisible illnesses or have them displayed for people to notice. Though sight loss is not an "illness" it can be just as trying. Tell him next time to scold that pole for jumping out into his way!
September 9, 2013 at 12:06 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more