Tuesday, February 4, 2014

in between the beautiful


His sister is SO good to him.

She plays outside in the cold snow with him happily. Pushes him on the sled never complaining that she doesn't get a turn to be in the sled and is doing all the work.  While he follows behind like a little puppy.  Soaking in the attention and fun.

And he repays her by throwing snow in her face not once...but twice.



These are the things that break my heart.


My heart hurts that she runs in the house crying. But I don't blame her for being so mad and hurt.  I’m hurt and mad too.


And my heart breaks that I don't think he really meant to be mean.  But still...it was. And it's not okay. I made him apologize but he doesn't seem to really feel bad. His cluelessness is both heartbreaking and disturbing.


And I don't know that he'll ever have the impulse control to resist.


And how will he ever have any true friends.

We have so many beautiful moments.  We really do.


But in between the beautiful lies the broken.


And in those broken moments I hate the scars...like ADHD...that epilepsy has left on him.




Keri V. Kennedy said...

Some day, he will meet other children with as beautiful of a soul as Bristel. Children who will care for him, not in spite of all of his quirks but because of them.
Toby and Bristel will lead the way for this to happen.
And one day, when you aren't even looking Trevy will show them just how much he loves them.

you have an amazing family Danielle, and I'm so blessed to be your friend, watching this journey.

Jennifer said...

Absolutely beautiful! I have a five year old son with multiple disabilities and we deal with this issue on a daily basis. He just doesn't seem to understand that other people have feelings . Will he ever?......