Thursday, June 26, 2014

they still throw me for a loop

 

 

Most of the seizures Trevor has had throughout his life have been quick, jerky movements. In seizure-ville, these are known as Myoclonic Seizures. I've seen hundreds of thousands of these seizures since he was 7 months old. I hate to say that I've grown comfortable with them. Because I'm not comfortable with seizures period. But I know these nasty little beasts. They are predictable for me. I know when to worry and when to just give him cuddles.

 

He has yet a new seizure type emerging, though. And it’s totally throwing me for a loop. I hate them. They are so much more visually disturbing. His right arm raises up. Not straight, though. It’s crooked. Shaped like a half moon. And sometimes it will rest on his head involuntarily. Almost like he's patting himself. His head turns slightly to the right and his eyes are…just weird. Everything slows down. His movement, his speech. To me, it feels like I'm watching a robot "power down". His body kind of hunches over. And he moans. It doesn't really last that long. Anywhere between 1 to 3 minutes. But compared to the quick myos it feels like an eternity. And I hate them.

 

…danielle

1 comment:

blogzilly said...

There's about twenty pounds of suck in that five pound bag. So what's the plan?

That movie you made up there, top right...how did you DO that. It's really something else.