Skip to main content

when Bach is smiling

The last three days have brought a bit of a reprieve. He only had one seizure each day (that we observed) and they were quite mild. 


Today, three horrible tonic-clonics savaged him before lunch. 


Sigh. 


In between the heartache we had this sweet adorable moment...





Me: Trevor, it's time for your Math test.


Trevor: Okay, Mom. Me can take it this way?


(observe the lounge chair style set up)


Me: Sure, but I want you to do your very best.


Him, clarifying: Like, no funny business?


Me: Right. No funny business.


~pause~


Him: Can I draw Bach smiley faces on my test?


Me, biting back my smile: No, that would be classified as funny business.

Trevor: Okay


**********

I let him add a Bach smiley face to his test AFTER it was complete. I love his interpretation of the wig. lol 




Labels:

Comments

Brenda Rhodes said…
I like sitting in self made lounge chairs and making smiley faces too. I was just never imaginative enough to call them Bach Smiley faces. Smart kid. I'm so very sorry about the seizures. I know as his momma this is tearing you apart. I'm adding him (and you) to my daily prayers if that's ok. He is such a little cutie!!!
June 23, 2017 at 5:54 AM
Danielle said…
Absolutely. There are never too many people praying for us. xo
June 23, 2017 at 5:14 PM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more