Skip to main content

better because

I interrupted Trevor's morning ABA session to administer his meds.



It's 9:30 and he's already had three seizures this morning. Two in the presence of his teacher. It's obvious she is profoundly moved each time she sees one, no matter how mild. 



There has been much talk by him about his imaginary friends this morning: Shimmer and Shine. Evidently, these are some new Disney characters?



As he swallowed his med-laced-applesauce, he said, "Shimmer and Shine have to drink their smoothies today."



"Yep," I replied, "Even imaginary friends needs their healthy breakfast."



He was quiet a moment.



"Shimmer and Shine don't feel sick all the time."



He didn't add the words "like me" but they were there. Hanging in the air.



His therapist caught my eye and we shared a moment. I'm feeling emotional today anyway. It's a miracle I held it together when I saw her eyes wet too. Selfishly, there is a part of me that draws comfort having someone outside of our family see and feel with me.



If I must find a silver lining, it is this: I am persuaded his is infecting her heart with true feeling and she will be a better therapist and person from having lived this time beside him and our family.

Comments

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...