Skip to main content

a deeper education

Around 7:30 this morning Trevor had one of his scary seizures. His big brother was giving him a shower. Trevor had just stepped out when I heard the call. I sensed immediately by Toby's tone that it was a big one and he was scared. The trouble with the big seizures is that Trevor is completely non-responsive and , at times, combative. I wrapped my arms around his dripping, little body and held the Frankincense to his nose. His lips weren't blue, but he didn't appear to be breathing. He was frozen. Eyes wide, blank orbs. Mouth agape. Drool beginning to pool on his lower lip. He was a statue. When he's completely gone like this it seems to take longer for the Frankincense to work. I've wondered if perhaps it's because he's not actively smelling. I hope that's the case and not that the benefit we were seeing was a honeymoon period.


Suddenly he was pushing my arms away. Still not responding, but at least moving again. Thankful that he's still small of form, I continued to gently, firmly, hold him. He was swatting my hands away from his nose. I continued to keep bringing them back up, all the while quietly asking him to please smell, assuring him that we were with him and he is deeply loved. If he hears my words in those moments, there is no knowing. He has no memory of them later. I speak them even still. It comforts our hearts and fills the air with something more than seizure.


In the midst of the event (the seizure lasted for two minutes) I had a transcendence moment. I heard my own voice in my ears, so calm. Incredibly calm. It didn't feel like my own. My own should have been breathy and panicked. I felt shaking. I think it was my hands, but it could have been Trevor's body. All the while I putting the bottle of oil under his nose while he pushed it away. Everything seemed to move in slow motion. It felt almost like I was watching this happen, not part of it.






When it was finally over, Trevor had a headache. This is common after his big seizures. As a team, the kids and I created a bed on the couch for him to recover. Even the dog was intent on comforting. He couldn't quite settle and asked for a bath. Once again, Tobin took him to the bathroom for his favorite comfort activity, because in his words, "How can I say no to him after that?"


I'm not sure how much academic school will take place in our home today, but there is a deeper education afoot.


This is our homeschool. This is our purple.


Comments

Kenneth Lilly said…
Overall how do you think the oils are processed by him?

I have been a bit out of it lately with these strange headaches I've been having...did you all move any closer to a conclusion about surgical options?

Danielle said…
The neurosurgeon has recommended completing the hemi. We're not ready for that yet. This time around it feels like the risk outweighs the potential benefit.

...d

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...