happy being trevy

The day after Christmas. Resting on the couch, first thing this morning, with his new Baltimore Oriole's binky and Adventure Toad stuffy. I don't know why I feel so bad this morning?   It's because you had a big seizure, Buddy.    Oh .  He rolls over and closes his eyes as the aftermath of the event continues to wash over him. It's astonishing how a 3 minute seizure can steal hours from his day as he recovers.   Sigh.   Life with refractory epilepsy is heavy. So very heavy. People love to credit God with perceived miraculous outcomes and our misguided ideas of good. Trevor teaches me daily that God is good in the heavy too. I don't mean to sound preachy first thing in the morning, but every seizure drives this idea home more deeply.   So, please, carry on praying for a miracle for us, but know that it could be the miracle He's working isn't in Trevor's body but in our hearts. ...

Our current artist focus is Rembrant. For six weeks we will study a different piece by the same artist. The idea of focusing on one artist for a period of time is in the hopes that we develop a friendship with the person and his/her work. I have grand images of my children strolling art museums with their children and immediately recognizing the style of an artist we've studied even had they never observed that particular piece. It's very tempting to rapid-fire everything beautiful at our children. There is so much we don't want them to miss and we're reminded so often that our time with them is short. Having one on the cusp of manhood, I agree. Our time together is fleeting, indeed. But I have stumblingly learned that walking slowly grows a much more meaningful connection in their hearts, be it with an artist, an author, or even mathematics. I am frequently forced to reexamine my motives as I find myself slipping back into bad habits again. Do I want them to sim...