Skip to main content

a different kind of miracle

The day after Christmas. Resting on the couch, first thing this morning, with his new Baltimore Oriole's binky and Adventure Toad stuffy.




I don't know why I feel so bad this morning? 


 It's because you had a big seizure, Buddy. 


 Oh


He rolls over and closes his eyes as the aftermath of the event continues to wash over him. It's astonishing how a 3 minute seizure can steal hours from his day as he recovers. 


 Sigh. 


 Life with refractory epilepsy is heavy. So very heavy. People love to credit God with perceived miraculous outcomes and our misguided ideas of good. Trevor teaches me daily that God is good in the heavy too. I don't mean to sound preachy first thing in the morning, but every seizure drives this idea home more deeply. 


 So, please, carry on praying for a miracle for us, but know that it could be the miracle He's working isn't in Trevor's body but in our hearts.

Comments

Kenneth Lilly said…
The faith you have...I marvel at it. At one time I say to myself it cannot be easy for you. Other times, I think that maybe you have reached a place where it is easier than I can ever know.

Shows you that I do not know a thing and that faith and I are still trying to figure each other out.

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.