happy being trevy

The sunlight. The sweet face. The concentration oozing from his pores. The joy I could see brewing in his soul at a job well done. All these ingredients swirled together to fill my heart with an "I love homeschooling" moment this afternoon. Which was much needed after the birthday angst he gave me this morning. The beast! He didn't even wait until I'd finished my coffee before he began with the whining and emmy worthy tears over wanting his birthday present TODAY. For a minute there I wasn't sure we were going to survive. But he rallied and I captured proof that requiring patience will not actually kill him. Though I'm pretty sure I noticed a few more gray hairs winking at me as I passed the mirror. Now to make it through until Sunday. We're planning to surprise him with an April Fool's birthday rather than making him wait until the 3rd.

The past month has been a bit of a blur as Trevor participated in a brain stimulation (tDCS) study out of Boston Children's Hospital that had us in the city for most of three weeks. The good news is that we're continuing to see seizure improvement from the treatment. The bad news is that because this was a study the technology is not yet ready for ongoing use. So now we wait and hope that the team can get this to us within the next few months.  In the meantime, we are trying to celebrate the reduced seizure days while we have them and transition back into our normal routines. I don't know about your home, but in ours transitions are never easy. Especially transitions that involve perceived work. Yesterday was rocky indeed, but happily today was wonderful!  Trevy asked if he could choose the order of our schedule and write his list on the whiteboard. How could I say no to that?! And just look at all those good things happening!  Criti...