Skip to main content

motherhood irony and instagram


In an ironic twist of motherhood, I find that I have less time than ever to document my heart and our days. I suppose I thought my time would free up as they matured. There has certainly been a lifting of the brunt of the physical care, but what has surprised me most is how the days can so quickly slip by even though my role has shifted towards more that of a counselor. I have yet to decide which is more exhausting: the physical care of young children or the emotional/mental care as they grow.


Which is not to say there isn't a physical component as well. 


Trevy, for all of his gains, still requires a moderate level of physical support throughout his entire day. As I helped dress him this morning, I paused, one leg in, one leg out, of his pants. The pause prompted him to look at me. Those eyes. So full of innocence and life and mischief. Oh, do I love his eyes. The force of his soul radiates through them and fills the room to max capacity like no other person I've ever encountered. I could see the question on his face. Why did you stop helping, Mom? He was leaning on my shoulder to support and balance himself because standing on one leg remains tricky for a boy with only a right hemisphere. The weight of his hand, the holiness of that moment, of all the moments I've lived beside him, gripped my heart. It was like, for just an instant, the fog of our future lifted, and I saw this very scene unfolding for all his years. He will need help getting dressed for all his days on this side of Eternity. There was a time when this sort of thought would have depressed me for days. Not so anymore. I suppose I've grown too. And so, I hugged him close. My eyes wet. Him, still one leg in, one leg out, of his sweats. He didn't understand why I hugged him so tight, but that's a beauty of Trevy, he doesn't need to. He just hugged me back in return. Love returning love, plus interest. As he squeezed me tight, I promised him I would always help him get dressed, as long as I'm alive. 


It's just that I might be so busy helping Trevy get dressed and such that I have little time to share here.


If you enjoy following Trevy, I find I'm more often sharing on Instagram these days, although even then I'm not sharing super frequently. It's mostly homeschool related, and not the sappy seizure mom prose I'm prone to here.



Comments

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...