Skip to main content

just another summer day...





Comments

Anonymous said…
I can almost taste it. Love to Bristel and Trevor. Hope the summer day was warm and fun. Love, Babu and Bibi
Shanna Grimes said…
so cute! I just let Kay have her first cookie yesterday (not a real cookie, a fig newton). She totally loved it. I figured she should try a few mildly sweet things before her first b-day, or the cake might make her sick. Javi had never had anything sweet before his first b-day and he totally gagged on his cake ;)
Danielle said…
Bibi & Babu - the kids send love back! It's starting to heat up...but nothin' comapared to you guys!

Shanna - lol...a fig newton...that's hittin' the big time! Are you plannin' a big party? I wanted to...but just didn't have the *umph* and we ended up just having a family day instead. But it was really nice...and Trevy loved it! I still can't believe how time has gone by...it seems like just yesterday day... I'm so glad Kay is doing so well...you know you're always in my heart! ((((hugs)))))

...danielle
JSmith5780 said…
How sweet that Bristel was sharing her popsicle!!

Shanna- a fig newton?? Come on mommy give her a REAL cookie! :)
Mama Skates said…
just precious!

and i agree shanna - woman, give that girl a REAL cookie! ~lol~ *winks*

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...