I felt like such a heel not going with Trevy for his first post hemi EEG.
Yeeeeeees...Jonathan went with him.
Yeeeeeees...he's just as good as me.
But still!
He's my baby!
I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations?
Cause Trevy's been back for hours now. And I'm STILL waiting!
Anyway...
Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds.
Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall.
And I cried when he told me...
that for the first time in almost two years. For the first time since this whole crazy mess began.
my baby's EEG is completely normal!
Side Note: It's super fun to sob in front of Japanese men and watch them squirm
When I kept repeating how awesome that was...he admitted that they were actually surprised too.
And that he personally was really happy for us.
But that he couldn't promise it would stay clean forever...
I told him...that's okay...
right here...right now...it doesn't really matter!
And then squeezed Trevor, who was curled up on my lap, until he protested...
Yeeeeeees...Jonathan went with him.
Yeeeeeees...he's just as good as me.
But still!
He's my baby!
I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations?
Cause Trevy's been back for hours now. And I'm STILL waiting!
Anyway...
Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds.
Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall.
And I cried when he told me...
that for the first time in almost two years. For the first time since this whole crazy mess began.
my baby's EEG is completely normal!
Side Note: It's super fun to sob in front of Japanese men and watch them squirm
When I kept repeating how awesome that was...he admitted that they were actually surprised too.
And that he personally was really happy for us.
But that he couldn't promise it would stay clean forever...
I told him...that's okay...
right here...right now...it doesn't really matter!
And then squeezed Trevor, who was curled up on my lap, until he protested...
Comments
Thinking it's time you should title him EX-seizure boy?!?
sheila
Another one of our friends had her first or possibly three surgeries tonight. The sunlight, artificial light...any light...causes her seizures. They are going to have to take most of her occipital lobe out, IF they are only coming from there. The jury is still out. She will definitely have vision loss, and could be blind. Could you imagine? Not much of a choice though. Her daughter is deteriorating so fast. They only give her 1 to 3 years to live. My heart hurts for them....
Anywoo....SOOOOOOO HAPPY. I am sure you will sleep better tonight than you have in a long time!!!!!
Marcia
You are an incredible mother, doctor, therapist and much more. You fought so hard for Trevy. He is here today because of you.
Ken was right...here's to a good week! Love you bunches and I am so incredibly happy for you.
I'm sure it feels so surreal, but it is sooo for Real!! That sounds like the best way to end your stay there..I think that should be more than sufficient for getting the discharge orders put in :)
Love and Prayers,
Jody
WUHOO!!!
I'm doing a happy dance for you all and grinning from ear to ear and sending you all the biggest cyber hugs ever!
Many hugs,
Margo
Long may it last. Go Trevor!!!
Hope you get out soon x
Anita
xoxoxox,
sharon
Megan (mom to 9 month old Ella--dx w/IS at 5 months old)