Q - How do you know when your baby's had enough EEG-ing?

A - When he starts ripping hair & electrodes off his head!
54 hours in we had to abort the operation.

Poor Trevy. He was literally freaking out. My mild mannered...super compliant...little monkey had had enough!

And there was no way it was going to continue. Even if he had to pull each electrode off himself! Of which he accomplished with at least two.

Thankfully we were sent home with a removal kit.

We tried to calm & comfort him. I really wanted to get at least one more nap time in. He thrashed & fought until he finally fell into a fitful sleep. Only to wake up 20 minutes later thrashing & pulling at his re-wrapped & hatted head like a crazy man. Or like a baby who'd had enough already!

Sooooo...J & I made the executive decision to go ahead and remove the leads a little bit early.

Trevy was so happy he looked like he was doing the happy dance!

And for the first time in 54-ish hours...he's sleeping. Peacefully!


KC's Mama said...

Best of luck with the results. Of course as always, you are in my prayers. Thanks for your comment on my page. I applaud you as well for your efforts and determination to make a difference for families struggeling to get ACTH for their kids. We are fighting a similar battle I believe. Let me know what I can post on my page about your message. What do you think would be the most effective. A link? I'm not sure... I don't get a lot of traffic yet, but it's something : )
Take care,



Andi said...

We managed to make it through our 24 hour EEG. I can't imagine doing it for 3 days. Emma didn't sleep as well as she did without it. I can imagine how tired the little guy was. Poor thing. :(

Shanna Grimes said...

Hope you all can get some rest now that the EEG is over. That is a long time to be on that button. I know you were on that button like stink on...well you know ;)

JSmith5780 said...

I'm impressed he made it as long as he did!

Now to hope for speedy results!

~Mama Skates~ said...

poor lil sweet thing - i'm glad u're done....hopefully u all r getting some rest


Monica, James, Connor McGuire said...

Poor little guy. Hopefully they got enough recording to tell you something. I would've probably pulled the things off of my head too after that long. Glad it's over for you all. Get some rest.
Big hugs, Monica

baby trevor's mommy said...

Thanks everybody...I'm just glad we made it through! Now the wait for the results!