Suprizingly I did not.
But I certainly feel like I may at any moment.
I don't know what's going to happen the next few days...and I'm not sure I'll be emotionally able to even post. Right now my heart is running down my face. I feel so weak. so scared.
But I want those that follow & love Trevor to know. To pray. To think love. We desperately need it. Below is the email I recieved this morning from Dr. Chugani after he viewed the video clip. My mom is watching all three kids so I can shower...and stop crying. I've left three messages already for our neuro...plus emailed new clips from this morning to them. I uploaded on of the clips from this morning to YouTube as well...it may take a few minutes to be viewable.
They are remnants of infantile spasms. The fact that he consistently goesto the right side suggests that he has a focus on the left side. Since heresponded so nicely to ACTH, many docs would give another course of ACTH. Others may use vigabatrin. If he did not show too many side effects toACTH the first time, I personally would go with ACTH, but opinions willdiffer, HC