Skip to main content

exactly

one year ago today our world crumbled around us.


And suddenly the tickets back to Tanzania we held in our hands...were no longer our future.


It's taken a while to settle into that. I told Jonathan that in many ways we're still shedding our missionary skin. Because one year doesn't erase eight.


And one year ago...everything changed.


One year later...it's feeling less crumbly...


::smile::
Labels:

Comments

Shanna Grimes said…
Hard to believe it's been that long already. Kaylee's year anniversary of her dx was on the 15th of last month. She was a swollen little butterball by Thanksgiving ;)

Hoping we will be celebrating seizure freedom for Trevy soon. The one good thing I can say about this crud situation is I've met great friends like you.

XOXO,
Shanna
November 16, 2008 at 3:23 PM
Anonymous said…
Our anniversary date is slowly approaching as well. December 24, Christmas Eve. What a Christmas present, huh?

Our world isn't feeling so shaky either.

The one thing that I regret about our whole hospital trip a year ago, is the family we shared a room with for a couple of days. Their daughter also had a couple of seizures. They brought up an IS diagnosis for them as well. They left before we got our diagnosis. If I had known what I know now, I definitely would have asked to exchange emails.

They were such a nice family. We chatted a little bit. They brought me cheesecake. I hope they're doing well.
November 16, 2008 at 3:35 PM
Danielle said…
Is it crazy that you guys are some of my closest friends? A little over a year ago we had no clue who eachother was...

Now I feel lost if I don't know what's up in your lives...

It is kinda crazy...huh?

Oh who cares...xoxoxoxoxo

btw Shanna...it was those butterball pics of Kay that stole my heart for you guys!

...danielle
November 16, 2008 at 3:44 PM
Mrs. M said…
Wow. A year. Does it feel short and long at the same time? Kinda like a "B.IS and A.IS" timeline.
Somehow your path in life has taken a detour from the Tanzania days/years. May that happiness, excitement and good health of those days return soon.
Hugs,
M
November 16, 2008 at 9:13 PM
Monica~ James~ Connor said…
Wow a year! Although I haven't been around for your whole journey I can definitely feel for you on this day. We are nearing our 2 year battle. Somedays I feel we are no closer to any resolution of this misery. Now it's the new monsters...every day...every hour. My heart is with you and thankful to have you as a friend, and thankful to follow your family's journey. :)
November 17, 2008 at 9:33 AM
JSmith5780 said…
The "anniversaries" WILL get easier. We are approaching 5 years soon! UGH I truly can't believe it's been this long!!

On a side note, Austin did manage to get 100% on his spelling test. I nearly cried. Especially after reading his ADD "eval" with notes from his teacher saying he's in the lowest percentage of the class.

The years get easier, the skin gets a little tougher, but the heart still aches at times.
November 18, 2008 at 6:26 AM
blondie said…
Kind of a bummer anniversary to celebrate but awesome to see all that God has used the last year to show you. Love you guys!
November 18, 2008 at 9:54 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more