Skip to main content

fairfax goes to rhode island picture marathon


We were thrilled to host Fairfax for a short time...and continue to increase awareness about Infantile Spasms!

This picture marathon is in no particular order...mostly because I'm getting awfully frustrated with the hourly shut down habit of my laptop! Ugh!



Trevy & Austin & Fairfax at Boston Children's...






Trevy showing Fairfax the fishies....



Fairfax joined us at our local Mickey D's family night...


and we were able to share about Fairfax's journey around the world for kiddos like Trevy...



Fairfax joined Trevy for his therapy sessions...
Work it out Bunny!



In my departure haste I forgot to slip the bunny in my heading to DC bag...
but he did proof my testimony for me!








Did you hear that?
That's Fairfax begging us to hurry up & send him somewhere warm already!





Fairfax got lotsa lovin'...
Course to Trevy nothin' says I love you like being tossed around the room!
::wink::


And lil' Fairfax finally got his wish to head somewhere warm...
He's on his way to sunny CA!

Labels

Labels:

Comments

JSmith5780 said…
I wanna go somewhere warm!!!
February 2, 2009 at 5:54 AM
Shanna Grimes said…
LOL! I love it! Here I seriously clicked on the link thinking "oh, where is fairfax going in CA?" Love the pics of him in the snow and working out at therapy.
February 2, 2009 at 6:31 AM
Mrs. M said…
So cute! Yay for Fairfax & the awareness he brings.
February 2, 2009 at 5:06 PM
Adesta said…
Those pictures were adorable. Thanks for sharing!
February 3, 2009 at 1:22 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more