I took a deep breath.
And in between Trevy's (mad) clusters...I finally picked up the phone and made the call. To pull the Vigabatrin plug.
Watching his seizures not only increase in number the past few weeks. But also intensity. So violent that they've knocked him backwards off his feet. Yesterday I almost poked his eye out playing the "where's your nose" game. A spasm jerked his little head forward with unexpected gusto. And I've just finally reached the peace point with letting go. I've said this before. But this time I'm serious. This time I actually made the call. And sent the email to follow-up.
We've given it a full three months. And while we've had a handful of good days. It's not enough. Trevy's still having 50-100 seizures on any given day. And it's just not enough.
So now we try Banzel.