Skip to main content

purple day (a picture marathon)


We purpled it up today for Trevor and all the other brave seizure fighters around the world!



How cool are these two?




It's handy that purp has always been Bri-bee's fave color...


but even Tobes was excited to root through his closet until he found something with a hint of purple! His own idea...no mommy pressure involved!

::sniffle sniffle::




All for that guy up there... The one with the cheesy grin...who likes to spill milk (any liquid really) ALL over mommy's freshly mopped floors! That habit's getting really old...


We wear purple for him...


Our very own little seizure fighter hero!





I know we...





make it look easy...







n' stuff....








but seriously...







snapping a pic with Trevy...




i


is kinda like huggin' a greased pig! Not that I would know or anything... I'm not from NE you know!


::grin::







We even convinced Jonathan joined the purple party...




Grab your magnifying glass...




lean in reeeeeeal close...




shut one eye tight...




then blink ten times rapidly...




And you'll see it! The itsy bitsy lavender pin-stripe! Easy to miss...but it's there!





You should wear purple more often, Babe...



I think it's hot!



::wink::





Okay sooooo...



I don't typically get into things like Purple Day (does that make me snob?).



Buuuuuut...



I really needed an outlet to invest energy into a happy...positive...warm n' fuzzy stuff!



Besides I've gotta say...



It was stinkin' overwhelming how many people FB-ed...emailed...called...to say they'd be wearing purple for Trevy! (and by default his fam...and seizure fighting friends...) That was a much needed heart boost at exactly the right time! Thank you...







I say let's do this again next year!

Labels:

Comments

Mama Skates said…
love it! even j's tiny stripe! ;0)

xoxoxox,
sharon
March 26, 2009 at 2:42 PM
blogzilly said…
I wore purple for Trevor, my son and everyone else on the planet who deals with this. Just helps to send out the positive vibes.
March 27, 2009 at 5:22 AM
Michele said…
I think this is a wonderful cause to help get the word out about those suffering Epilepsy and other seizure disorders... I can see this getting bigger and bigger each year.
There was a time when I didn't talk about my Epilepsy but now, I'm beginning to feel a little more relaxed about it!
Hugs to you all... you are a very strong family! =)
March 27, 2009 at 3:39 PM
Danielle said…
Thanks for the support all! I was happily surprised by all the peopl who contacted me to say they were wearing purple in honor of Trevy. It's so crazy how something that seems so small can mean so much...ya know.

btw Michele I popped in at your site...love your pics! If you're ever my way...and inclined to give rookie some pointers...*smile*

...danielle
March 28, 2009 at 6:52 PM
Shanna Grimes said…
Sadly, I had nothing purple so I wore purple's cousin, a bluish purple. Kay wore head to toe purple. Even had purple on her shoes ;) Next year I'll have a purple shirt. It was nice to see all my IRL friends wearing purple though!
March 29, 2009 at 1:54 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more