Lots of testing...and med swapping going on in the life of Trevy during the next coupla weeks...
March 24th...PET scan. Which...Dr. Chugani has agreed to look over for us as well!
March 30-31st...in-patient VEEG. Dr. Genes wants to draw some blood to run an SCN1A test at the same time. Annnnnnd...we're set to say good riddance to Vigabatrin...and begin trialing Banzel.
April 3rd...Trevy's 2nd birthday! There may be a zoo trip involved?
April 17th...Trevy's case will be presented to the surgical team. Depending on the data gathered we'll then be referred to Boston Children's. Where Dr. Neuro has assured me if Trevy is a surgical candidate...we'll be headed. I'm feeling MUCH more comfortable wrapping my mind around that!