Skip to main content

note to trevor...

Ummmmm...








in case you were wondering...











or somehow happened to miss it...













you have a SEIZURE DISORDER!















Gobs of unexpected SEIZURES daily!











So for goodness sakes STOP WITH THE CLIMBING ON THE DINING ROOM TABLE!!!!!!











Or at the very least...for the sake of your mommy's already prematurely age-ing face...










stop the free jumping from the top of said table in attempt of grabbing the ceiling fan cord!
Labels:

Comments

Mama Skates said…
omg - what a daredevil! just put a cape on him & call him SUPER CUTIE!!!

;0)
sharon
April 23, 2009 at 1:25 PM
Sophie's Story by Elaine said…
You're kidding me...my heart is pounding just thinking about it. I get scared watching Sophie walk up the steps. Nonetheless jumping on top of a table!!!
April 23, 2009 at 2:49 PM
Carolyn said…
He needs one of those shirts that says, "I do my own stunts".

:)
April 23, 2009 at 3:05 PM
Monica~ James~ Connor said…
oh no not another table climber!!! i have caught connor on a couple of occasions pushing the chandeleir above our kitchen table. gives me a heart attack each and every time! we don't need a skull fracture in addition to seizures....oh BOYS!
April 23, 2009 at 8:07 PM
Melanie said…
HA HA HA.....too cute.......
I guess seizure disorder or not...nothings going to stop him!!
April 23, 2009 at 10:28 PM
JSmith5780 said…
There is no denying he's a boy.

I think any mother who has boys ages WAY FASTER than a mom with just girls!
April 24, 2009 at 6:04 AM
Anonymous said…
Do you want your baby gate back?
MOm
April 24, 2009 at 7:57 AM
blogzilly said…
Yeah...I freak out when Bennett gets it in his mind to run around the kitchen even though he can't keep his balance on the meds...he falls way too much and it ages me each time. Thank God in the evening I can take my anti-anxiety meds, otherwise I would come apart I think.
April 24, 2009 at 8:28 AM
Danielle said…
Definately ALL boy! Definatey NOT steady enough to be pulling off crazy table jumping moves! Although he did manage to scoot down the stairs on his boot this morning...with me holding his hand to help keep him steady!

Anyway...I find him on the dining table at LEAST three times a day. And another half a dozen time half way up!

No wonder I'm zonked by noon!

...danielle
April 24, 2009 at 11:32 AM
Katie Ireland said…
Determination...lovin' that!

Katie
April 24, 2009 at 12:52 PM
Adesta said…
Jen, unless one of the girls is a boy stuck in a girls body like my Haylee!!!! lol...she likes to climb on her table that is in the living room!! Can't tell you how many times we've heard 'Bang! I'm ok!!' lmao....
April 24, 2009 at 5:29 PM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more