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insider seizure parenting tip of the day

Always...



Always...



Always...



Ask for copies of your child's records!




Don't be like me. And wait (because it's easier than facing nasty office administrators) until you NEED it!



EEGs come on a disk. As do PET scans & MRIs. The notes from the neurologist are typically in paper format. I request being "cc-ed" into those. Which usually means...an envelope in my snail-mail box a month later. You can also ask for a print-out of the EEGs. I find it super handy to actually see with my lil' eyeballs what Trevy's brain waves look like. With all the data my brain is trying to process...I need to have information in every way, shape & form possible to help with absorption!



Anyway...



If you're not sure how to collect your child's records...my suggestion?



Ask the person with whom you have the best rapport! He/she'll know how to get you the copy in the easiest way possible! And save you the stress headache of asking the resident meanie. Cause it's been my experience that meanies tend to moniter all the important record jazz. What's up with that?



Which is why this morning...in my desparation to get everything together for Dr. Rockstar...I asked the fill-in nurse how to do all this mess. Her tone was warm & friendly. And she was more than happy to help me out! And even agreed that the people in the records depot are meanies!
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Comments

Adesta said…
I've never had to get a copy of records for the girls, but I have called doctors for test results and such before and even those people are meanies! It's like they are thinking, how dare you interrupt my day with your little request! grrr...glad to hear that you got someone nice to help you out!
May 18, 2009 at 10:07 AM
blogzilly said…
We got copies of everything in our latest round of trying to get records, except the CD with MRI images on it. Not sure how to get that.
May 18, 2009 at 10:57 AM
Sophie's Story by Elaine said…
For all of you going to see Dr. Rockstar soon...You can get copies of the PET scans, MRIs, EEGs on CD by going to the records dept that is in the same hospital you will be at (just a few floors up) and filling out a request form. They will do it right then and there but sometimes it will take awhile to get it all burned so you can either come back or fill out an envelope and they will mail it to you. They have a great records dept.
May 18, 2009 at 5:41 PM
Holli said…
What a great tip! I never understood the importance of having them at my fingertips until I had to get them sent to Dr. C. It took weeks for our local hospital to get them over.

Plus, all records were automatically sent directly to me from our tests in Detroit. What a new insight I got from having them all where I could read them myself...instead of my scribbled notes from listening to the doctors!

You bet I'll make a point to ask for them from now on!
May 19, 2009 at 8:45 AM
Pink Daisy Photography said…
Ok who is Dr.Rockstar? haha!!

Lisa
Kali's mom!
May 19, 2009 at 9:12 AM
Anonymous said…
Excellent advice!

Barbara
May 19, 2009 at 6:08 PM
Mrs. M said…
GREAT Tip!!
I haven't done this as of yet, but will.
Thanks D!
May 23, 2009 at 5:49 PM
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