Skip to main content

Hasbro Children's Dream Night @ the Zoo


Every June our local Children's Hospital sponsors a special night for the families that frequent their services the most.

It's invitation only. I love that the invite is to Trevy. And he's then allowed to invite his fam to join him!

And Jonathan mentioned that it's nice to have an event where Toby & Bristel are treated exactly the same as Trevy! Special!

Face painting...tattoos...games...free food...ice cream even...and of course all the kewl animals! All mixes together for a fabo evening of just enjoying each other...and forgetting to be sad for a little while. Especially when the seizure boy of the fam is funky dancing over every little thing!

It's an international event...inquire at your local Children's to see if they've joined the bandwagon yet? And if not...maybe you can be the one to get the ball rolling!

Comments

blogzilly said…
That looks like a blast.
Colby said…
I really enjoyed your video! I would love to try to make one, but I doubt I would be able to figure it out!!

What a wonderful day y'all had! You have such a beautiful family....Enjoy these days....It's so true what they say....They go by with a blink of an eye!!!

Thanks for sharing...

Cyndi
Mama Skates said…
now that looked like fun!

:0)
sharon
AWWW, that looks like sooo much fun!!! You guys look like you were having such a *happy* day...a very well deserved happy day!
Tara said…
Looks like the kids had a blast and very cool for the hospital to have such a special event. Also, Aidan & Trevy's hair looks very, very similiar these days. Aidan is also sporting a full head of curls.
I LOVE the video montage. I know I have said this a million times over but your kids are just too adorable. And I don't know if I was seeing things but did you actually have a picture of an animal eating another animal?!?!

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...