Skip to main content

because we needed to make this memory (a picture marathon)

















Labels:

Comments

Sinead said…
Happy happy joy. I'll be praying for Trehor today.
October 6, 2009 at 6:19 AM
KC's Warrior Mama said…
He is beautiful Danielle. I hope that his miracle goes as smoothly as possible : )

Love Karen
October 6, 2009 at 6:34 AM
JSmith5780 said…
Give that cuties some squeezes from me.

Be strong, we are all here for you today.
October 6, 2009 at 6:36 AM
Adesta said…
Beautiful pictures. No words are ever needed when you take the pictures D.

Praying all goes well for you all today. {hugs}
October 6, 2009 at 6:45 AM
MSKMOM said…
Looks like he really enjoyed himself there. I am praying for you all today and in the following days. I love your pictures. Hang in there. Love you guys!!!
October 6, 2009 at 6:51 AM
blogzilly said…
Great pictures....
October 6, 2009 at 6:56 AM
Lisa said…
Such great pictures! Can't get you guys out of my mind today. Two weeks ago today Julia had her resection and as scary as it was, I can definitively say it was all worth it. I say that to be reassuring because when you're living it it seems like it will never end and you just want the stress and fear to go away. But this too shall pass...this fear and anxiety...stay strong momma!
October 6, 2009 at 6:58 AM
MJStump said…
Crying when I see the pics because he is so beautiful! Praying for Trevy and mommy and daddy.

HUGE Hugs and Tons of Prayers,
Jody
October 6, 2009 at 7:04 AM
Sophie's Story by Elaine said…
This pictures melted my heart. He is so precious.
October 6, 2009 at 7:30 AM
Colby said…
AMAZING photos.....But it helps when the child is your Trevy.....

AND when the mommy is SO talented with the lens.....

Cyndi
October 6, 2009 at 9:00 AM
Anonymous said…
Wow, what amazing pics. Trevy is just a doll. Detroit sure didn't look that good when we were there:)
Thinking of you all day.......

Hugs,
Sheila
October 6, 2009 at 10:50 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more