Skip to main content

it's just wrong





To send bills BEFORE the child who just had half his brain removed is even discharged!




That's right, folks.




Not only am I so exhausted I can hardly keep my boot-tay on this chair. I also have a pile of bills. Bills that were WAITING for us. Now get to be exhausted AND I must sift. Which really means call the various billing (lairs) departments and see what hasn't been billed correctly. Or what won't be covered.




Sweet! Can't wait...




Oh...and on a quick happy non-sarcastic note...




Took Trevy to school today. I know...I'm slightly off my rocker. I've come to terms with myself.




Buuuut...not only did his teachers smother him in love and hugs!




He did amazing! Even took three solo baby steps!




Which is just heart-warmingly fabulous...




But I still don't wanna make those calls.
Labels:

Comments

Kristine said…
I live in Canada and can't for the life of me understand why America doesn't want to take care of their sick. I hear so much about the nightmare of hospital bills and co-pays. I am so thankful that we don't have to deal with that here. That is the LAST thing you need right now.

Wow, school?! That's amazing. :)
October 22, 2009 at 2:20 PM
Monica~ James~ Connor said…
Ugghhh, Medical bills and insurance companies make me want to throw up in my mouth!! Greedy vultures...

On a happier note, SO glad you all are home & that Trevy is doing so well!!
October 22, 2009 at 2:37 PM
hannah and blitzen said…
That is just down right disgusting!!!!!!! COME ON PEOPLE! I don't even know what else to say, except, they can wait a few days (weeks, perhaps...). You deserve uninterrupted, no nurse popping in, no IV beeping and no puking....SNUGGLE TIME!!!!!
so happy you are home....
Marcia
October 22, 2009 at 3:20 PM
Danielle said…
Kristine...one girl's amazing is another CRAZY! ;)

Monica...OMGosh! Those pajamas??? So flippin' adorable! And the coffee...just sent me over the edge. Thank you so much, hon! xoxo

Marcia...I know. They suck. I expected bills. But WAITING for us?!?!?! Anyway...

...danielle
October 22, 2009 at 3:57 PM
JSmith5780 said…
Boo for the bills... Yay for Trevy steps!
October 22, 2009 at 6:45 PM
Adesta said…
Ok, you put tears in my eyes when you wrote that Trev took a few steps on his own! I was not expecting that so soon!!! I am so happy for you all!!!

BUT...I'm now mad that they sent bills before you were even discharged. I mean, REALLY? Course it could have been worse, they could have brought them right to you in the hospital right?! lol
October 23, 2009 at 6:22 AM
Colby said…
Praise the Lord for those little feet working!!!! I could not have heard anything more uplifting!

The hospital bill thing? Sucks Sucks Sucks!!! I would take my own pretty sweet time....From what I have been told, as long as you stay in contact (with your slobbering sweet, apologetic self), they pretty much will give you time....I can only imagine that stack waiting for you!

Hopefully there won't be much of a co-pay for you....Will pray for that!

And once again....GO TREVY!!!!

Cyndi
October 23, 2009 at 7:50 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more