To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.
Comments
I must not have been paying attention to what to expect. I am following along like someone who does not know the path. Thank goodness for all the supporters who can guide and comment from going before you.
I am reassured by the extreme (seems to me) precision of pre-surgery diagnostics. The brain is so divinely complex. (This is really in response to the post above this one.) Looks like Dr. C is meeting and exceeding his responsibility to inform you of what will happen in surgery with the expected consequences.
Praying for you all. Barbara