Skip to main content

Trevy's new do and other cute stuff (a picture marathon)

First up...



Jonathan caught him mid-smile this morning! We haven't seen a happy face since last Tuesday!



But this morning...we put Grams on speaker phone blowing him kisses and got this...









So here ya go...






the haircut.



















Whaaaaaat???

You didn't really think I was gonna buzz him did you???



















A glimpse of the boy from before...








The boy who loved his bath!








And still does!





Comments

Jamie said…
Ok so I dont comment much but Ive been reading! Lil Guy has touched my heart for sure! Things WILL get better! Prayers and Prayers..! in those big eyes you can still see the old trevor...just give him some time :)
(((hugs)))
madies mommmy
MJStump said…
Though some of his curls are gone, you can never change those beautiful eyes of his! I just melt whenever I see that face, and those sweet eyes.

Thanks for sharing these pics...pics that are all too precious!

Prayers and hugs,
Jody
Katy Duddridge said…
Danielle - love seeing the photos, he is a gorgeous boy:)

Also fascinated by the scar, much bigger than i'd expected and wondering if Henry's will be that big, good preparation for us (will show my husband so he's not too shocked when it's our turn).

And, we've gone for the buzz cut already! though H never had those fabulous curls!! after weeks of picking EEG glue out of his normal-length hair we had enough, 'Number 2' for EEGs now & possibly 'Number 1' pre-op!
(he looks either like a hooligan or a child in an orphanage with lice......)
Ah well makes for some interesting photos for the future....;)

Hope today is a good day x
I LOVE it!! I think it looks even better than a buzz. And so versatile too...lol!!
Holli said…
These are beautiful! I love the "paci smile"! :)

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...