Skip to main content

whole buncha everything (a picture marathon)























Labels:

Comments

hannah and blitzen said…
Beautiful pictures Danielle.... You have a gorgeous family! So glad you are starting to live "normal" life again. : )
October 25, 2009 at 2:12 PM
Sophie's Story by Elaine said…
Love your picture marathons. It looks like Bri got a haircut too. I really noticed Trevy's skinniness in these pictures. Sophie lost almost 5 pounds but quickly gained them back. It is so great to see the fam back together again!!! I am so happy for you all. Give it time...the spunk will come back with the appetite.
October 25, 2009 at 9:57 PM
Adesta said…
First I have to say, I love Bri's hair! She looks so much like you D!

I adore the pic of J and Trevy napping away. Now that's peace.

Sooo good to see all of you together again and enjoying life. {hugs}
October 26, 2009 at 4:24 AM
Mama Skates said…
oh my, love Bri's little haircut! & u know i always love a good pic marathon!!! ;0)
October 26, 2009 at 7:12 AM
JSmith5780 said…
Love all the pics! And I, too, like Bristel's short hair!
October 26, 2009 at 9:22 AM
Colby said…
GORGEOUS photos, as usual, girl!

I especially love the sleepy ones and Trevy's Tee Shirt!!!

Thanks for these....Isn't it just magic to be back together again???

Cyndi
October 26, 2009 at 6:38 PM
Monica~ James~ Connor said…
Super duper pictures!! I love Bri's new haircut! i didn't think she could get any cuter. I'm glad the shirt fits Trevy. I dig his scar, but I dig the little boy way more!! I can tell he has lost some weight...want me to send him a dozen Krispy Kremes?? that will chunk him up quickly...it worked for me! ;)
October 30, 2009 at 8:20 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more