Skip to main content

The Girl With Half a Brain - a Today Show segment

I haven't watched it yet myself...



too busy.



But I fully intend to. When I can catch a second to breath.



In the meantime...I hope you click here to watch the Today Show's segment about Cameron. A brave little girl. Connected to my brave little boy. For they share the same nightmare miracle.
Labels:

Comments

blogzilly said…
Definitely need to check that out.
March 25, 2010 at 9:02 AM
JSmith5780 said…
Amazing story. Austin's seizures presented at times just like that. Before we got the IS diagnosis, they thought he had Rasmussen's. So amazing to see how well she is doing now!
March 25, 2010 at 10:02 AM
Colby said…
I saw it this AM and plan to post it on Facebook....I think it is very educational for all who see it...The little patient is doing AMAZINGLY well....

Colby's drops are very similar to her's....I worry as much now about injury from falls as I do the seizures themselves....

Cyndi
March 25, 2010 at 6:06 PM
Anonymous said…
The parents and child were great! (The media woman was a little lame and the MD talked down to about a 3rd grade level.)

This more-knowledgeable audience will likely see more than most.
Barbara
March 25, 2010 at 6:22 PM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more