Skip to main content

randomnings

Toby to Trevy (who has decent aim and was karate chopping at him) during a recent car ride...


Stop torturing me!


*********

Do I look beautiful today, mommy?



Asks Bristel from where she was perched on the stairs. Modeling out grown jeans and a too-tight t-shirt. Hair going every which way. Looking adorably...Bristel-ish.



Always...I replied.



She flashed her dimples and simultaneously unplugged her sucking thumb while dropping her blankie in the basket.



I've decided I'm not going to suck my thumb on days I wear beautiful things! Isn't that a good idea?



She's convinced her blankie makes her suck her thumb. Which is really cute. But do I tell her that I don't mind her blankie snuggling thumb sucking ways...cause it means she still my baby?



******


Toby says about his sister...



She sure doesn't love her posse!



When asked to define who exactly her posse was...he informed...



That would be us! Her family!


**********


Bristel was rosy cheeked and holding Callie by the leash when I glanced out the big window to check on them. When Bristel saw me she waved furiously and said...


I love you, mommy!


flashed her dimple and joyfully added...


So does Callie! Did you know I know how to talk to animals?


And away they went. To continue conversing about whatever little girls and puppies do...I'm sure.


**********


We happened to be touring Trevy's class during snack time. I came prepared. That time. With juice and animal crackers.


Trevy was happily munching. While I was busy soaking in the room.


I felt a tug on my hands. Looked down to find Trevy looking into my eyes. Sippy cup held up high in one hand. The other still tugging mine.


And then the most beautiful thing happened...


He said...


"maaaaww"


Which, my lovely friends, means MORE!


And is why my eyes were misting as I jumped up to get him "Maaaawwww"!

Comments

joanne foltz said…
I "so" appreciate these stories!! Since I am 10,000 miles away, it helps me feels close to the grandkids! Thanks, Danielle, for the stories. Bibi
Alicia said…
Love these posts.
MJStump said…
i so love the randomings and all the special little moments you share!

they make me cry a little as they are such sweet mommy moments...can never have too many of those :)
Anonymous said…
Always looking for "maaaww" here. And receiving it. Heartfelt thanks!
Barbara
Anonymous said…
I have to admit I really like the ramblings.......... I laugh out loud as I share them with Pop pop
Adesta said…
When I first read the first little story, I thought it was Trevy telling Toby to stop torturing him! I was like, no way!? He got taht all out!? lol My brain is so not functioning today....*sigh* Would have been a good day to stay home and sleep.............

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...