Skip to main content

a great way...

...to start the day!



Yes, I'm the obnoxious mommy who must walk her little tumbling bumbling boy across the street to board the school bus. Which means if you happen to be trapped on Main when bus eleven pulls to the curb...you'll be waiting a few extra seconds.



I would say sorry. But I'm not.



Especially on a morning like this. Before handing him over, I kissed my fingertips and placed them on his shmoochy whoocy lips. To all (me, Bristel, Miss. CNA, Misses Bus Monitor and Driver) of our delight he kissed his chubby little palm and reached up to return the favor!



::smile and sigh and think to myself I love this kid::



Luck would have it that his window is on our walk back home side. So Bristel and I stand on the corner and wave and blow kisses and holler love yous like fools over all the brouhaha of the early morning hubbub created in our quaint New England hamlet.



He started waving back a while ago. And we can even read his "buh-beyeeeee" lips.



Yesterday Miss. CNA i-phoned...



Just wanted to let you know Trevor said bye bye bye mommieee bye and looove you



As if that wasn't sweet enough she just sent this...



Just so you know when you signed I love you


sign language i love you Pictures, Images and Photos


Trevor said love you :)



He has come SO far in just six months. Lord knows...he has a heck of way yet to go. But no doubt about it - he's amazing.



::sigh::



And for the record...I've never thought otherwise!
Labels:

Comments

MJStump said…
Makes me all teary just reading this post! These are the HUGE little things that make us want to squeeze them and neer let go...the things we long for and can never get enough of.

Love it!!
June 9, 2010 at 9:07 AM
Sophie's Story by Elaine said…
What a sweet little story to reset my crazy morning mood. Love ya.
June 9, 2010 at 9:08 AM
Anonymous said…
AWW!! that is so adorable! thank you for writing it so beautifully too, i literally felt like an eyewitness to the event!
love you!
C
June 9, 2010 at 6:15 PM
Anonymous said…
Through tears of joy, I am writing this. I know that the Lord has a special task for Trevor. We had a young man here last week and he has cerebal palsy. He was such a joy to the people here in Arusha, Tanzania. He was happy and articulate. He has a masters in business and is very involved with ministry and family. He was a joy to be with. I thought of Trevor each time he spoke in church and when he gave the biggest smile. I love you all and am so happy to have such good news!! Love and hugs all around, Bibi
June 10, 2010 at 4:13 AM
JSmith5780 said…
Awesome communication progress and SO SWEET!
June 10, 2010 at 5:37 AM
Anonymous said…
now its time to work on our new sign for "Grams"
June 10, 2010 at 5:39 AM
Colby said…
Danielle....I could just FEEL your joy here!!! He HAS come so far....and will continue on by leaps & bounds!!!!

Woooo Hoooo!!!!!!

Go Trevy!!!!!!!!!

Cyndi
June 12, 2010 at 6:58 PM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more