Skip to main content

you know you're a special needs mommy when...

You, your Seizure Boy, his home-based therapist, her clinician along with an intern and just arrived home from work daddy are all crammed into the 12x12 School/Therapy Room...


all worried about the odd behavior of your Seizure Boy...


Did he have a seizure? 


Is this postictal? 


Why did he suddenly get so tired and quiet?  


Is he just being shy? 
God...I wish he could just tell us what is wrong!


While you're all discussing the various possibilities the phone rings.  Which you have to answer it because it's Dr. Ortho's secretary and you need to reschedule last week's missed appointment.  An appointment that the only way you would have canceled is if you were on your death bed.  Happens that you were.  So you take the call.  


The room is now teeming with you, your Seizure Boy, his daddy, Miss. HBTherapySpecialist, her clinician, a doe eyed intern and Miss. Ortho Secretary on the phone...


when suddenly your Seizure Boy (who is now in his worried daddy's arms)  blows chunks everywhere!  Tah-duh...we have our non-verbal answer, people!  In unison every adult in the room shouts...


Nooooooooooooooooooo!  


Miss. Ortho Secretary shouts into the receiver...


Whaaaaaaaaaaaaat? 


And the only thing you can do is laugh.  Because clearly, you know you're a special needs mommy!   


********************


ps.  I stayed on the phone to book the appointment before cleaning up the mess.  The clinician and her intern made a quick scamper out the door.  And Miss. HBTS stayed and helped daddy get Trevy bathed and into clean jammies!  I LOVE her! 

Comments

another mother said…
Poor, poor Trevor. You guys just can't catch a break. I hope it was an isolated incident and not a stomach bug. And just so you know, I teach school and being able to identify and verbalize that they are going to puke seems to be one of the last skills kids acquire. I've had 4th graders puke all over my floor. I really hope Trevy is feeling better (and no one else decides to throw up). And I'm really glad it wasn't a seizure. You know your a seizure mom when you're happy to see puke huh?
February 20, 2011 at 6:55 AM
Holli said…
OH. NO!!

You guys have had your share already this month. ENOUGH!

Hope everyone is on the mend now...

And Happy Birthday too!

((hugs))
February 22, 2011 at 8:29 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more