Skip to main content

Dream Night at the Zoo today–3T MRI tomorrow (a picture marathon)

 

Every June our local children’s hospital hosts a very special event for families battling chronic childhood illnesses on a daily basis.  Free food…free fun…fabulous exhibits!  It’s always so special and wonderful!  This year’s was no exception!  My eyes started misting at the gates! 

 

dream night at the zoo 007

dream night at the zoo 008

dream night at the zoo 013

dream night at the zoo 016

dream night at the zoo 017

dream night at the zoo 020

dream night at the zoo 022

dream night at the zoo 023

dream night at the zoo 024

dream night at the zoo 027

dream night at the zoo 029

dream night at the zoo 034

dream night at the zoo 036

dream night at the zoo 037

dream night at the zoo 038

dream night at the zoo 041

dream night at the zoo 044

dream night at the zoo 048

dream night at the zoo 050

dream night at the zoo 051

dream night at the zoo 054

dream night at the zoo 055

dream night at the zoo 062

 

 

Thank goodness last night was SO wonderful and fun.  It’ll give us a lot to “talk” about on our way to Boston Children’s today.  Where Trevy is scheduled for a sedated MRI.  (read: FASTING YUCK!)  Hopefully we’ll be able to distract him with lots of “zoo” chat?!  This is his first MRI post surgery.  I’m anxious to know the results! 

 

…danielle  

Labels:

Comments

Sophie's Story by Elaine said…
Did Trev get a haircut...either way I'm lovin' the way it looks. Looks like you all had a great time. You are so good with capturing the moment with your camera. Good luck with the MRI.
June 4, 2011 at 8:59 AM
Danielle said…
I miss the curls...but the new do does look cute. He's still talking about the "shoooo" today.

Oh and re:MRI...OMGosh. What a day. Bleh. But at least I came home with a disc so now I get to see what half a brain looks like to a radiologist. :)

...d
June 4, 2011 at 3:08 PM
legomaster said…
What a fun evening. Your kiddos are growing so much....all three of them!
Sedated MRI...thank god for sedation, and yes thumbs down to the fasting. Poor you all!
June 5, 2011 at 1:11 PM
MJStump said…
How is it that you have managed to have not 1, but 3 beautiful kiddos?

Looks like everyone had a great time! Totally loving the big boy that Trevy is turning into...so handsome!
June 6, 2011 at 10:36 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more