happy being trevy

I’m not sure how else to put it other than to just go ahead and say… I hated it! Hated.  It.  Just wait until I tell you what I’m talking about before taking my side.  Because chances are…you might not agree with me.  And I’m totally comfortable with that.  See, I’m on this new mission to be totally completely honest.  All of the time.  Including now.  Especially now.  When I’m discussing something that I abhorred from the tips of my chipping multi-color (compliments of Bristel) polished toes to my splits ends! And the worst part of it is… I was really looking forward to it too.  What a let down.  We’ve been dvd watching fools.  Ever since we learned that Netflix would be joining the Capitalists R Us Club.  You did hear that new this month Netflix will now be charging a fee for each service?  No more dvds and live streaming together.  Oh no.  Now you have to pay for th...

    Trevy loves Elmo.  So I couldn’t resist personalizing and downloading three free Elmo tracks to surprise him with later!          Click here to get yours!   Make sure to click the blue “no thanks” button if you’re not interested in purchasing an entire cd and just want to claim the freebies.        …danielle 

    Thanks to modern technology we had several days to prepare for Hurricane Irene’s debut.      The most important thing on our Hurricane Survival List was making sure we had all of Trevy’s meds stocked up.  Because it’s worst case scenario to run out of seizure meds!  We stocked up on water and non-perishables.  Bought 4 pizzas, cause we all like to munch pizza even when it’s cold.  No soda though.  We’re trying to kick the habit.  Turned the fridge up to the highest setting.  Cleaned the cooler in preparation of being filled with perishables during the storm so we wouldn’t have to open the fridge.  Filled every jug we own with water.  Set the coffee pot for the wee hours of the morning to ensure we had our morning brew.  Batteried up all the flashlights.  iPad spent the night charging up.  Forgot to charge the mini dvd player.  But that just meant more game playing.  Games are so mu...

    Not for me, Sillies.        (although…maybe…)       ( stop agreeing with that maybe!!!!!!!!!)        Since I know several therapists of different varieties read Trevy’s blog, I thought I’d put out a call for HELP !        It’s nothing major.  I just need you to help me try and understand something.  Because I crave understanding him.  Things I don’t understand keep me up at night wondering.  Google-ing.  I’ve already asked 2 outta 3 of his out-patient (oh…did I mention that I finally set up those OT & PT therapies?  Maybe I am Super Mom?! ;) therapists.  Both nodded like it must mean something.  And shrugged that they couldn’t imagine what.        But I KNOW there must be a what and a why somewhere out there!       I don’t remember him doing this prior to surgery.  As much anyway. ...

Snuggled up on the couch.  Blankie and Binky at hand. Plus, a blank et (not to be confused with a blank ie – the little one) to keep him toasty warm. A pillow propped behind his head. The shades drawn to make it cozy.  Something interesting and educational typed into the YouTube search window.  He can handle it from there, knowing which little button will pull up similar videos.  Which he’ll skim through.  Watching each about half way through.  And when he gets bored with YouTube…he knows how to flip through all the apps.  Scoping out the ones that might snag his interest for a few seconds in a row.  And Trevy’s all set up to be a Pad Potato for a while… …danielle

  Trevor absolutely adores greeting people.  He says “hi” to anyone.  Or everyone.      The mailman.   The dude in line behind us at the market.   The family walking their dog down the street.  He’ll even knock on the window pane to get their attention while hi-ing them.    The people in the car zooming by us on the highway.   Plus all the regulars.  Teachers.  Friends.  Neighbors.   You get the idea.      He doesn’t just say “hi” once either.  Oh no.  He’ll say “hi” over and over again.  Each time slightly louder just in case they didn’t hear.  Until the other person responds in kind.  Not all do, though.  But when a person does they’re rewarded with a melt you from the soul out Trevy smile.  Plus, at least five more hi-s .  And then he’ll turn to me and say…     I hi     So very proud of himself.  And I...

      Click me to see what may possibly be the most adorably delicious picture of Trevy to date!      Thank you to The Herald News for thinking this story was worth front page coverage.      …danielle

    This post was inspired by Aidan’s mom, who in turn was inspired by Max’s mom.  Both links of which I encourage you to read.      The topic of Ideal vs. Reality resonates with me.  Because.  Well.  I’ve always been a sucker for Truth.  Transparency.  Get Real-ish-ness.  It’s so easy to be Fake.  Ya know.  Especially in blog-land.  Where smoke & mirrors of limited scope can make things appear either more perfect or less than they really are.      Not so long ago I had a cute email dialogue with another homeschooling mom.  She’d stumbled on my ( dirty little secret) blog and rather than encourage her…she found herself feeling discouraged.  Everything seemed so tidy.  I appeared to be so organized.  Very June Cleaver.  (which couldn’t be farther from the reality!  I haven’t worn a skirt in years. Wink.)  Her husband noticed the dismay on her face ...

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